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perkreations

Honesty about creativity, art, mental illness, grief, feminism, human rights and chronic pain with a healthy dose of sarcasm

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sleep

Grief From Moment to Moment

I knew grief was coming. I’ve felt grief many times before. It always feels distinctly like grief, yet no grieving situation ever unfurls and flows in similar fashion.

I am speaking specifically of grief felt when a loved dies. One can grieve the loss of a job or a home but those losses, for me, tend to bring forth an entirely different type of grieving.

My maternal grandmother died yesterday. Although she lived two provinces away we were still close. We became even closer after my Mom, her eldest daughter, died in early 2014. We both took her death very hard and struggled a great deal.

Yesterday I felt as though I should feel sadder, be more upset. I cried when I told my husband very early in the morning. He held me as I swiped at my eyes and tried to breath deeply and fully. Mostly I felt glad she’d gone quickly, with minimal suffering and I felt glad I’d told her many times how special she was to me and how much I loved her.

My husband and I had lunch with my father and his lady-friend yesterday afternoon. We laughed and talked and my appetite seemed normal. I suppose the only thing not normal was how guilty I felt for feeling so normal.

Later on I suddenly felt incredibly irritable. I snapped at my husband, immediately apologised, snapped again, apologised, and lathered, rinsed, repeated until I was in tears for behaving so poorly and he was bewildered.

We watched a movie I chose and I complained about how terrible it was the whole way through. I stomped upstairs after the film and shuttered myself in my art studio. I was, at once, angry at myself for choosing such a shitty flick and annoyed at my husband for insisting we finish it.

I decided to take part in a 30 paintings in 30 days challenge suggested by an old friend and fellow artist and participant. I completed a small abstract piece last night and found myself going from soothed to impatient as though riding a pendulum as I worked. I was satisfied with the finished painting and surprised how much the colouring and style reminded me of my Grandmother.

My sleep was wrought with tossing and turning. I woke up really early for coffee but found myself dosing off an hour later and returning to bed for rest of the morning.

For the rest of today I’ve found myself on an un-merry-go-round of irritable, sentimental, guilty, confused, and numb. This is what grieving my Grandmother feels like so far.

I’ve also found myself with a sour stomach, a sweet tooth, shakier hands than usual, and struggling to cope with higher than usual pain levels.

I never would have predicted this would be how I’d feel. I’m doing my best to surf the emotional waves rather than fight them but it’s difficult as I keep feeling as though I’m not doing this right and I know that’s not possible.

I’ve learned we all experience grief differently and grieving will be a different experience every time. So I’ll just keep trying to honour my grandmother’s memory as best I can and honour my feelings as they ebb and flow. If there’s ever a time to go easy on myself and practice self-love and self-care it’s now.

K

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Panic Attacks as a Child

My heart pounds so heavily it reverberates through my entire body. This feels terrifying and only adds to the worries bringing me to this elevated state of arousal.

I am supposed to be sleeping but it’s clear relaxation is a ship long since sailed and I am stranded on an island of anxiety. My mind races. On this night one small worry has become a storm and soon swirls into a fucking tsunami.

This particular tsunami is not a current concern. It is a memory of a string of my very first panic attacks. Awww, such sweet and special memories๐Ÿ˜›

I didn’t experience a lot of anxiety attacks until my late 20’s and 30’s but the more I consider the first pushing of my panic button the earlier in life I can recall it happening.

When I was around 9 years old we were studying World War 2 and the holocaust in school. I was also reading Anne Frank Diary of a Young Girl. The more I learned the more disturbed I felt.

I cried in my mother’s arms for ages when I finished the book. I couldn’t, still can’t, comprehend the hatred shown for differences that shouldn’t matter. We’re all human and no one person is better or more valuable than another.

I lay awake many a night terrified of World War 3, the possibility of conscription, concentration camps, torture, and the possibility of the end of the world. I shook with fear, sobbed into my pillow, felt the terror of hyperventilation, and I was tormented by nightmares bringing all my fears to life.

My parents spent a lot of time reassuring me that WW3 wasn’t nigh. They were also real with me. They told me the holocaust was an unforgivable crime against humanity and that many people, including Anne Frank and most of her family, had died painfully and needlessly.

I often worried my father would be conscripted and have to go fight in a war or that we’d be forced into a death camp and be gassed in a “shower” room. I was scared a dictator would come to power and slowly strip our country of rights and freedom. The more I learned about the 2nd world war the more I feared hubris, ignorance,and forgetfulness would plunge our world into a similar state of chaos.

Perhaps my fears were over the top and incredibly dramatic for a 9 year old but my Mom and Dad listened to my concerns patiently, gave me honest answers to difficult questions, and they reassured me with logic and reasoning rather than empty platitudes. They also didn’t tell me to stop reading and learning so intently. To help reassure and encourage me they kissed me, held me tightly and told me they loved me.

Looking back I still feel the fear and panic that came with learning about such a difficult and terrifying subject. I cannot even imagine how awful it would have been to have lived during that time. I don’t regret the learning for one second though. Some subjects are scary but we cannot sensor education just because it’s frightening. We must remember to learn from the mistakes of the past.

I think my parents did a commendable job dealing with my first panic attacks and many more to follow. The fact that I suffer from panic attacks is nobodys fault. My Mom and Dad did a great job making sure I felt safe and loved even if panic seized and I am forever grateful for this.

My hope is this will reassure others that although difficult subjects may lead to difficult times we shouldn’t be ashamed of fear or avoid learning. Sometimes the only way to cross a river is to swim no matter how swift the churning current and rollicking rapids.

What are your thoughts about panic attacks or any other psychological challenges during childhood? I’d love to hear any stories or advice.

K

Love ๐Ÿ’– Recovery?

No matter how much I plan and pace and predict how attending an event will work, coping with the consequences never fails to surprise me with its intensity. I do my best to mitigate pain difficulties during an event and leave time for recovery but I’m not psychic so I cannot account for everything that might happen and how it will make me feel.

Myself (far right) with my girlfriends last night taking timeout in the beer garden to enjoy some sangria๐Ÿ’–๐Ÿ’–๐Ÿ’–

Last night I had the pleasure of attending Folk Fest with a couple of girlfriends. They were kind enough to pick me up and take me in the early evening, thus decreasing the total time I’d be there but still allowing plenty of time for us to have some fun and see the entertainers I most wanted to see.

Lately I’ve been saying, “fuck it, I’m going,” then figuring out ways of doing some of the things I most enjoy rather than being permanently sidelined. I consider myself incredibly lucky to have friends and family willing to take my special needs into account and help me to make the most of what I am able to do.

I think my new fuck it attitude has enabled me to enjoy life a little more but it has also had a direct effect on the time I spend out of commission during the time following. No matter how much care I take during an event I always know there will be time spent in recovery mode for several days after.

What does recovery look like for me? It’s not particularly pleasant;

  • Pain levels highly elevated
  • Decreased mobility
  • Extra time spent sleeping and feeling overly tired
  • Inability to do much beyond resting for several days. Recovery time needed depends a myriad of factors and I often find it difficult to predict
  • Feeling overly emotional, tearful, depressed, and angry
  • Difficulties concentrating
  • Difficulties completing simple household tasks
  • Increased need for pain medication
  • Headaches

In spite of my desire to try to take part in things I enjoy more I can’t help but wonder if it’s worth the inevitable painful recovery time. In spite of this trepidation I plan to continue to say, “fuck it, I’m going,” whenever I can reasonably do so. The joy returning to my life is, I think, worth it and will hopefully make me stronger in the long run.

If you suffer from a chronic condition do you have a, “fuck it, I’m going,” policy or something similar and if so what do you do to mitigate recovery time and still enjoy taking the chance to do what you love on occasion? I would love to hear your ideas and stories.

K

Another Ode to Insomnia Goodnight Brain

Goodnight Brain,

all full of thoughts, 

now’s not the time to untie knots

Goodnight mind, 

you’re safe and fine,

just let go and unwind 

Goodnight to repeating thoughts,

sleep’s but a door left unlocked

Goodnight, goodnight!

For fucks sake

I said Goodnight

why am I awake?!

Goodnight Brain,

all full of thoughts

now’s not the time to untie knots

K

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